Now that Elaine is in Preston and Lynn is now sleeping at home. John and I went up there last night and deep cleaned the house from top to bottom. He no longer has dead box elder bugs inside his windows. We cleaned the bathrooms, vacuumed, swept, and mopped. Just wanted you all to know we did that so you didn't have to worry about it while you try to plan your vacation here (Colette and Melanie). We also went and saw Elaine last night. She looked really good and she had clothes on no more hospital gown!! She was very positive and was excited to see the girls. It also has been a good thing for Lynn. He can now take care of things at home before going and seeing her. He seemed excited to plant his garden today. He is no longer cooped up in that hospital room!!
Thursday, June 13, 2013
Tuesday, June 11, 2013
She's On Her Way!!
At Last
Lynn and Elaine are heading north today! Because of some insurance hiccups Elaine wont be doing physical rehabilitation at the hospital. She is heading to a facility in Preston. It will be nice to be closer to home and it's just another step in the right direction. It's a good day!
As soon as we have more information we will post it here.
Wednesday, June 5, 2013
Walking with Austin
Lynn and Elaine have become close to some of the people who work at the hospital. They definitely have their favorites. One of the favorites is Austin, a physical therapist. I think that Elaine liked him early on because he is tall and strong and she felt really safe when he was working with her. Now though, he remains a favorite because he is simply a good person. He is real, kind, and always positive.
She is doing so well and is making huge strides. These photos were taken on her third walk for the day. She just gets better and better every day!
I am so glad that Lynn was able to talk Elaine into a couple photos while she was walking with Austin today. All through the walk they talk and even laugh at their inside jokes.
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| Kayl loved walking with Grandma. |
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| Lynn pushes the chair just in case she needs a break.
She didn't need it today!
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She hasn't been moved to physical rehabilitation yet but it should happen really soon. She has one remaining chest tube that is still draining a little liquid. Once her doctor is willing to remove the tube she will be able to leave cardiovascular rehabilitation in the dust.
Wednesday, May 29, 2013
Another Step Forward (hopefully)
Yesterday afternoon my mom had another minor surgery. They inserted tubes in both her sides to help drain more fluid that has built up around her lungs.
After talking to my dad today, it seems they have already helped quite a bit. The plan is to leave the tubes in until Friday.
This brings up one of my concerns that I'm sure others have had also. Why does fluid in or around her lungs keep occuring? I asked my dad to clarify the situation. He said some of the fluid was existing that they hadn't been able to get out yet, some is new. Her lungs have not been able to fully expand yet due to the fluid, once they get rid of enough of it to allow the expansion, it should help prevent more buildup. This along with increased physical activity should resolve the issue.
He also delivered the good news that by the beginning of next week, mom will most likely be transferred to the rehab floor where she will be able to participate in a more rigorous physical therapy program. She has proved she can handle the move through a lot of hard work and effort on her part. When I called around noon today she was already about to start her second walking session of the day. Go Mom!
After talking to my dad today, it seems they have already helped quite a bit. The plan is to leave the tubes in until Friday.
This brings up one of my concerns that I'm sure others have had also. Why does fluid in or around her lungs keep occuring? I asked my dad to clarify the situation. He said some of the fluid was existing that they hadn't been able to get out yet, some is new. Her lungs have not been able to fully expand yet due to the fluid, once they get rid of enough of it to allow the expansion, it should help prevent more buildup. This along with increased physical activity should resolve the issue.
He also delivered the good news that by the beginning of next week, mom will most likely be transferred to the rehab floor where she will be able to participate in a more rigorous physical therapy program. She has proved she can handle the move through a lot of hard work and effort on her part. When I called around noon today she was already about to start her second walking session of the day. Go Mom!
Thursday, May 23, 2013
Stronger
The best news that we can report is that Elaine keeps getting stronger. She now walks with a walker and she consistently goes a little further each time (usually twice a day). This is exactly what she needs to be doing. She is evaluated on a daily basis and just as soon as she can tolerate three hours of physical therapy a day she will be moved down to the rehabilitation unit.
If she could be persuaded, I would like to put a picture of her on here. Her hair is growing fast and is so beautiful. One of the nurses compared her as she is today to the family picture here in her room. She said she thinks she is more beautiful today, with shorter hair, because you can see so much of her natural beauty. I completely agree!
We are so very grateful for all your continual prayers on Elaine's behalf. Love to all!
If she could be persuaded, I would like to put a picture of her on here. Her hair is growing fast and is so beautiful. One of the nurses compared her as she is today to the family picture here in her room. She said she thinks she is more beautiful today, with shorter hair, because you can see so much of her natural beauty. I completely agree!
We are so very grateful for all your continual prayers on Elaine's behalf. Love to all!
Thursday, May 16, 2013
Breathing Deep
As mentioned before, breathing has been a bit of a struggle for Elaine. They give her a medicine to help remove excess fluid but when the doctors looked at x-rays today they determined that there was just too much fluid that was preventing her from breathing deep enough.
Elaine's platelets have been low and as long there isn't a reason for bleeding it's been okay. The platelets help the blood clot. In anticipation of removing the fluid off of her lungs the first thing they had to do was give her platelets. As they were prepping her the doctor asked Elaine if she had any concerns. She just looked him in the eyes and told him she trusted him. I think she made his day.
The next step was to do an ultrasound on her back so they could see exactly where the fluid was settling. Once they had the right spot they inserted a catheter as small as a needle between her ribs on her back and they successfully removed 1.25 liters of fluid.
As they were finishing the doctor asked Elaine if she could feel the difference and she said that she could. It was visibly obvious to Lynn and I that she was definitely able to take deeper more effective breaths. The doctor then said, "that couldn't have gone better." We were all able to take deeper breaths with that statement.
While I was there today I heard two different nurses say how sweet Elaine is. Her days aren't easy but she is always willing and so kind. She is an amazing example to everyone.
Elaine's platelets have been low and as long there isn't a reason for bleeding it's been okay. The platelets help the blood clot. In anticipation of removing the fluid off of her lungs the first thing they had to do was give her platelets. As they were prepping her the doctor asked Elaine if she had any concerns. She just looked him in the eyes and told him she trusted him. I think she made his day.
The next step was to do an ultrasound on her back so they could see exactly where the fluid was settling. Once they had the right spot they inserted a catheter as small as a needle between her ribs on her back and they successfully removed 1.25 liters of fluid.
As they were finishing the doctor asked Elaine if she could feel the difference and she said that she could. It was visibly obvious to Lynn and I that she was definitely able to take deeper more effective breaths. The doctor then said, "that couldn't have gone better." We were all able to take deeper breaths with that statement.
While I was there today I heard two different nurses say how sweet Elaine is. Her days aren't easy but she is always willing and so kind. She is an amazing example to everyone.
Tuesday, May 14, 2013
The Next Step
Elaine's kidney and heart function continues to improve gradually. They have started to give her a medication that helps remove the excess water from her body. She has struggled to maintain good oxygen levels because of some fluid on her lungs and this medicine has made it easier for her to breathe.
She has been cleared medically and so what lies ahead for her is physically rehabilitation. There has been some discussion about moving her to a nursing facility closer to home. There is a lot to consider in a move like this. She now has a case manager and once ALL of her doctors were consulted, it was determined that she will not be moved until there is a plan in place that will guarantee her success. As of today, she is in the cardiovascular rehab unit but the concern is that her physical rehabilitation needs can't entirely be met there. She's not quite ready for the intensity of full rehabilitation but won't progress as she needs to with the limited physical therapy she is currently receiving.
For now, we are praying that they can find a way for her unique needs to be met so that she can finish the fight she has so valiantly fought.
She has been cleared medically and so what lies ahead for her is physically rehabilitation. There has been some discussion about moving her to a nursing facility closer to home. There is a lot to consider in a move like this. She now has a case manager and once ALL of her doctors were consulted, it was determined that she will not be moved until there is a plan in place that will guarantee her success. As of today, she is in the cardiovascular rehab unit but the concern is that her physical rehabilitation needs can't entirely be met there. She's not quite ready for the intensity of full rehabilitation but won't progress as she needs to with the limited physical therapy she is currently receiving.
For now, we are praying that they can find a way for her unique needs to be met so that she can finish the fight she has so valiantly fought.
Wednesday, May 8, 2013
Good News
It's official... Elaine had the dialysis ports removed from her neck today so she won't have to have dialysis again! The ports were big and bulky so it must feel good to be free from them. When I walked into her room today she was sitting up and she looked great!
No More Dialysis
I was lucky enough to spend lunch time with my parents yesterday. I got some great news when I arrived. My mom was about to receive her LAST dialysis treatment. While my mom expressed some nervousness about "being on her own" without the dialysis, I take this as a sign that her kidneys are doing their job.
In other good news, my dad is thinking sometime in these next few days they will move her from the fourth floor down to rehab. This move will mean that the doctors feel confident she is doing well enough they don't have to keep as close of eye on her. It will also mean intense physical and occupation therapy sessions.
Her current strength only allows her to walk a few feet before making the return trip to her bed. Depending on how fast she progresses it could be anywhere from a week to months before they release her. How ever long it takes, I want to be there on the day she gets to finally walk out the doors of that hospital and go home! We are one step closer to that goal.
In other good news, my dad is thinking sometime in these next few days they will move her from the fourth floor down to rehab. This move will mean that the doctors feel confident she is doing well enough they don't have to keep as close of eye on her. It will also mean intense physical and occupation therapy sessions.
Her current strength only allows her to walk a few feet before making the return trip to her bed. Depending on how fast she progresses it could be anywhere from a week to months before they release her. How ever long it takes, I want to be there on the day she gets to finally walk out the doors of that hospital and go home! We are one step closer to that goal.
Monday, May 6, 2013
Scaling Back
We have been so grateful for everyone that has expressed love and concern on Elaine's behalf. She continues to move forward and it is an absolute answer to many prayers. Her days have become pretty predictable and routine. That in itself is a blessing but it makes it hard to provide new information here on a daily basis. We will continue to provide information but it will only be two or three times a week. We will definitely share any new information as it happens but just wanted everyone to know that it will be less frequent.
Again, thank you! Everyday Elaine expresses gratitude for all the kindness that has been shown to her and her family.
Again, thank you! Everyday Elaine expresses gratitude for all the kindness that has been shown to her and her family.
Sunday, May 5, 2013
Sunday
I wasn't at the hospital long today but while I was there we found out she got to skip dialysis again today. That is always good news. She was tired today but when physical therapy asked if she wanted to take the day off she said she would feel guilty all her life if she did. So she got up and walked.
Elaine is working so hard to get better. She lost a lot of muscle strength throughout all of this and while she is getting stronger everyday she still has a lot if work ahead of her. She has a lot of faith and we know she can do it.
Elaine is working so hard to get better. She lost a lot of muscle strength throughout all of this and while she is getting stronger everyday she still has a lot if work ahead of her. She has a lot of faith and we know she can do it.
Saturday, May 4, 2013
Baby Steps
Elaine started her day with the physical therapist. As expected, she did a great job. Usually before the physical therapist leaves they will give her an exercise to do in bed until they come again. It's cute because even before they have left the room she'll start doing the suggested exercise. She always gives it her best effort.
Another impressive task: eating. She is still feeling some nausea and so it's really hard to force food down when she feels that way but, she does it. If they can get the nausea under control her days will be so much easier.
She didn't have to do dialysis today and the kidney doctors said that her kidneys are slowly but surely showing improvement. Her bone marrow is producing blood cells and her white count is up to normal. All of these little things mean that she is continually showing signs of improvement all around.
Her doctor confidently told her that by November she should feel better than she has in five years. I know she wants it even sooner than that. While the road ahead will be long the wonderful thing is that she keeps taking baby steps forward.
For the time being the staff is asking that she only has visits from family. We will let you know as soon as that changes.
She told me today that she feels all the love and prayers from everyone and it means so much to her.
Love to all!
Another impressive task: eating. She is still feeling some nausea and so it's really hard to force food down when she feels that way but, she does it. If they can get the nausea under control her days will be so much easier.
She didn't have to do dialysis today and the kidney doctors said that her kidneys are slowly but surely showing improvement. Her bone marrow is producing blood cells and her white count is up to normal. All of these little things mean that she is continually showing signs of improvement all around.
Her doctor confidently told her that by November she should feel better than she has in five years. I know she wants it even sooner than that. While the road ahead will be long the wonderful thing is that she keeps taking baby steps forward.
For the time being the staff is asking that she only has visits from family. We will let you know as soon as that changes.
She told me today that she feels all the love and prayers from everyone and it means so much to her.
Love to all!
Friday, May 3, 2013
Elaine had a good day yesterday. They switched one of her nausea medications and it worked great. She walked out in the hall and went further then the day before. She got up again in the afternoon and walked again then sat up for a while. While she sat up she ate some chocolate peanut butter ice cream. She got some good calories in and even thought it tasted good. We thought she was going to do dialysis but they decided she could skip. Yay! They think her kidneys are working a little better and she may be able to switch to taking a pill rather then do dialysis so often.
Last night Elaine had a tough time sleeping. They missed her nausea medication so she got a little sick.
Even with the restless night Elaine got up and walked a little the morning and then sat up for over an hour. Of course the hour was a little against her will since the therapist said he would be back in 45 minutes and never came. She wasn't to pleased but Lynn and the nurse got her to bed. I am sure the next therapists won't get to leave without a blood commitment that they will be back. :)
Lynn and Elaine both appreciate the cards and notes of encouragement they receive in the mail from you all. Lynn reads every one to her and it lifts both their spirits to know how many people are thinking of them. They love you all and are so thankful you take the time to write. From our whole family thank you so much for your friendship and thoughtfulness.
Last night Elaine had a tough time sleeping. They missed her nausea medication so she got a little sick.
Even with the restless night Elaine got up and walked a little the morning and then sat up for over an hour. Of course the hour was a little against her will since the therapist said he would be back in 45 minutes and never came. She wasn't to pleased but Lynn and the nurse got her to bed. I am sure the next therapists won't get to leave without a blood commitment that they will be back. :)
Lynn and Elaine both appreciate the cards and notes of encouragement they receive in the mail from you all. Lynn reads every one to her and it lifts both their spirits to know how many people are thinking of them. They love you all and are so thankful you take the time to write. From our whole family thank you so much for your friendship and thoughtfulness.
Thursday, May 2, 2013
Wednesday
Wednesday was another good day. Elaine is getting stronger all the time. She was able to get up in the morning and stand to brush her teeth. Then she sat up for a while. In the afternoon she got up and walked out of her room further then she has ever made. Often times yesterday while she was just lying in bed she was doing exercises on her owe with her arms and hands to work on getting all the movement back. It was good to see her determination to be exercising and working on her strength even when the therapists weren't there to make her. Elaine is really working hard to get down to floor 2 (rehab). Hopefully she will be moved there soon. If she keeps up this pace she will be dancing up the stairs into her house in no time. Thank you Elaine for being such a great example of faith, hard work and determination. I know many people have been touched for the better by hearing your story.
Tuesday, April 30, 2013
Tuesday Updates
Elaine had another good day. With help she was able to walk out of her room to the nurses desk and back! This is the first time that she has made it out of her room. After her walk she was able to sit up for a while as well. We were all quite impressed.
They missed her 6:00 am nausea pill so she didn't get it until 8:00. That got her off schedule so she struggled with nausea all day. She is doing better on her eating though. She is getting more and more calories down each meal. They want her to drink a Boost with each meal and one more outside of meal time. This is a big struggle right now. Anyone who has ever had to drink those things can feel her pain. It is miserable. One time when I asked her if she could do a few more sips she said, "bring it on!" She is amazing and is working so hard.
She had dialysis again today and that always makes her tired, but she perked up and ate dinner really well after it was over. Right now she is working on getting her calories down and building her strength back. She is getting stronger everyday.
I know she gets tired of Lynn and I nagging her to eat. I have to keep reminding her I do it because I love her. When I remind her of that it gets her to stop glaring at me. :) She did request a few times today that Lynn and I go to lunch together and leave her in peace. We didn't oblige. Then she would be asleep all of the sudden... one has to wonder if she wasn't pulling the act like you sleeping so you don't have to be bothered with people trick. :) It has been a blessing to me to get to be here with my amazing in-laws. Although I wish the circumstances that brought me here were different, I have been enjoying my time with them immensely. I am very lucky to have married into such a great family.
They missed her 6:00 am nausea pill so she didn't get it until 8:00. That got her off schedule so she struggled with nausea all day. She is doing better on her eating though. She is getting more and more calories down each meal. They want her to drink a Boost with each meal and one more outside of meal time. This is a big struggle right now. Anyone who has ever had to drink those things can feel her pain. It is miserable. One time when I asked her if she could do a few more sips she said, "bring it on!" She is amazing and is working so hard.
She had dialysis again today and that always makes her tired, but she perked up and ate dinner really well after it was over. Right now she is working on getting her calories down and building her strength back. She is getting stronger everyday.
I know she gets tired of Lynn and I nagging her to eat. I have to keep reminding her I do it because I love her. When I remind her of that it gets her to stop glaring at me. :) She did request a few times today that Lynn and I go to lunch together and leave her in peace. We didn't oblige. Then she would be asleep all of the sudden... one has to wonder if she wasn't pulling the act like you sleeping so you don't have to be bothered with people trick. :) It has been a blessing to me to get to be here with my amazing in-laws. Although I wish the circumstances that brought me here were different, I have been enjoying my time with them immensely. I am very lucky to have married into such a great family.
Monday, April 29, 2013
Good Day
Elaine had a good day today. She looked so much stronger even from when I saw her on Saturday. By the time I got to the hospital this morning she had been up and walked to the bathroom. She was able to do so twice more while I was there. The doctors are very pleased with her progress. Nausea is still an issue. If they could get that under control, she would be able to do much more physically. The speech therapist came and asked questions to check her cognitive skills. She did great. She is much more alert and talkative too. It is great to see her personality coming through as she interacts with the doctors and us. Here are a few of the highlights.
When I saw her at the hospital on Saturday I told her that she was allowed to swear in her mind and when people were bugging her to just act like she was sleeping so she didn't have to talk anymore. This was our first conversation this morning.
Elaine: I have been thinking a lot about what you said.
Me: What is that?
Elaine: About swearing at people under my breath. I've had to do that.
I didn't want to correct her that it was in her mind not under her breath, but I think she is justified to upgrade to under her breath. :) It is hard to get any rest with someone coming in every few minutes to check on her.
Later at lunch time I think she was ready to get me on a plane back to Dallas. This was one of our conversations:
Lynn: Good job you almost ate the whole cookie.
Me: Now just wash it down with a can on Ensure!
Elaine (glaring at me): Whose side are you on?
Me: Yours, that is why I'm helping you keep the feeding tube out.
Elaine: (silence, but still giving me the look.)
Me: I think she wants to send me back to Dallas.
Lynn: I think she wants me to go with you.
Lynn and I thought we were funny. Elaine no so much, but she tolerated us.
When the speech therapist stopped by and they were talking I was sending an email on my phone when I hear this:
Elaine (pointing at me): Well it's her fault.
Me: What did I do?
Elaine: You told me that when I didn't want to talk to people I could just act like I was sleeping.
Me: Hey now if you are going to tell my secrets to tolerating the hospital, I'm not going to be able to share them with you anymore.
Elaine just smiled at me.
It was so great to be able to have some light hearted conversation with Elaine again. It is great to see her smiling and see her sense of humor coming through. I know that some will wonder why I put these conversations on the blog, but I wanted to remember and I wanted her to remember that even in her hardest times she was able to still joke and see the humor through it all.
Another thing that struck me as I visited with Lynn and Elaine today was when Lynn blessed Elaine's lunch meal before she ate it. It was a beautiful blessing. I know most of us bless our food before we eat it, but how often do we really stop to think what we are doing? Elaine NEEDS that food to bless her and strengthen her in a way that most of us have never needed. I felt so strongly that because of the blessing her food would do more then the little amount she could eat seemed able. She needs every single calorie she can get to heal her body. How great it is that our Heavenly Father allows us to bless the food we eat to make us healthy and strong. I know I will never think of the blessing before a meal with such irreverence again.
Right before I left another doctor from the rehab floor came to talk with Lynn and Elaine. They talked about what would happen on the rehab floor and the time frame from there to come home. Though no specific time frame was given to when she would be able to go to rehab, it was a great sign that they are starting to think about getting her out of the cardiac floor. That is the last step before she can be home for good. Once she is on the rehab floor she will do about three hours of therapy a day. Once she is able to do that her strength should come back fairly quickly. It was nice to hear the doctors start to talk about her going home. It shows the great progress she has made.
When I saw her at the hospital on Saturday I told her that she was allowed to swear in her mind and when people were bugging her to just act like she was sleeping so she didn't have to talk anymore. This was our first conversation this morning.
Elaine: I have been thinking a lot about what you said.
Me: What is that?
Elaine: About swearing at people under my breath. I've had to do that.
I didn't want to correct her that it was in her mind not under her breath, but I think she is justified to upgrade to under her breath. :) It is hard to get any rest with someone coming in every few minutes to check on her.
Later at lunch time I think she was ready to get me on a plane back to Dallas. This was one of our conversations:
Lynn: Good job you almost ate the whole cookie.
Me: Now just wash it down with a can on Ensure!
Elaine (glaring at me): Whose side are you on?
Me: Yours, that is why I'm helping you keep the feeding tube out.
Elaine: (silence, but still giving me the look.)
Me: I think she wants to send me back to Dallas.
Lynn: I think she wants me to go with you.
Lynn and I thought we were funny. Elaine no so much, but she tolerated us.
When the speech therapist stopped by and they were talking I was sending an email on my phone when I hear this:
Elaine (pointing at me): Well it's her fault.
Me: What did I do?
Elaine: You told me that when I didn't want to talk to people I could just act like I was sleeping.
Me: Hey now if you are going to tell my secrets to tolerating the hospital, I'm not going to be able to share them with you anymore.
Elaine just smiled at me.
It was so great to be able to have some light hearted conversation with Elaine again. It is great to see her smiling and see her sense of humor coming through. I know that some will wonder why I put these conversations on the blog, but I wanted to remember and I wanted her to remember that even in her hardest times she was able to still joke and see the humor through it all.
Another thing that struck me as I visited with Lynn and Elaine today was when Lynn blessed Elaine's lunch meal before she ate it. It was a beautiful blessing. I know most of us bless our food before we eat it, but how often do we really stop to think what we are doing? Elaine NEEDS that food to bless her and strengthen her in a way that most of us have never needed. I felt so strongly that because of the blessing her food would do more then the little amount she could eat seemed able. She needs every single calorie she can get to heal her body. How great it is that our Heavenly Father allows us to bless the food we eat to make us healthy and strong. I know I will never think of the blessing before a meal with such irreverence again.
Right before I left another doctor from the rehab floor came to talk with Lynn and Elaine. They talked about what would happen on the rehab floor and the time frame from there to come home. Though no specific time frame was given to when she would be able to go to rehab, it was a great sign that they are starting to think about getting her out of the cardiac floor. That is the last step before she can be home for good. Once she is on the rehab floor she will do about three hours of therapy a day. Once she is able to do that her strength should come back fairly quickly. It was nice to hear the doctors start to talk about her going home. It shows the great progress she has made.
Sunday, April 28, 2013
Mark's update today
Mark let us know that even though Elaine has had some dizziness and nausea, she is battling through. She has done physical therapy despite the dizziness and has eaten well. They did dialysis today to get some fluids off, but Mark reports that he can see the determination and the fire in her eyes to get better.
Having been in Texas when this all happened and getting all the information second hand, I was so happy to get to see Elaine yesterday. I agree with Mark that she has a determination to get better and to get home as soon as possible. Elaine is a strong, amazing women and she can do hard things. And she will do hard things as she continues to get stronger every day.
Thank you all for your continued prayers. I know that Elaine has felt them as she battles through the hard times. I know that our family has felt them as we see the progress that she has made. I know that the doctors and nurses have felt them (even if they don't realize it) as they have worked to get Elaine better. Prayers make all the difference in the world. Thank you all.
Having been in Texas when this all happened and getting all the information second hand, I was so happy to get to see Elaine yesterday. I agree with Mark that she has a determination to get better and to get home as soon as possible. Elaine is a strong, amazing women and she can do hard things. And she will do hard things as she continues to get stronger every day.
Thank you all for your continued prayers. I know that Elaine has felt them as she battles through the hard times. I know that our family has felt them as we see the progress that she has made. I know that the doctors and nurses have felt them (even if they don't realize it) as they have worked to get Elaine better. Prayers make all the difference in the world. Thank you all.
Keeton vists Grandma and Grandpa
This little boy was so happy to get to see Grandma and Grandpa yesterday. He was so good that we got to stay for a little over three hours. He would stand up next to her bed and say "mam ma" (Grandma).
As Colette posted yesterday Elaine made some good progress. Keeton enjoyed sharing Grandma's crackers with her at lunch. He also practiced his walking while Grandma did her physical therapy. They were a great team and both were wiped out by the end of the visit.
Saturday, April 27, 2013
Busy Day
Lynn just called me with an update.
Elaine has been very busy today. Physical therapy helped her get up and she shuffled to a chair and sat in the chair for an hour. Then she shuffled back to her bed.
They were going to do dialysis today but decided not to do it after all. The less often they do dialysis, the better. It allows her kidneys to get stronger. They are hoping her kidneys can eventually do all the work.
Her feeding tube got clogged today. They were scheduled to replace it but decided to keep it out and see how she does. She was able to eat half a bowl of soup and some crackers for lunch. She has been upgraded to a regular diet so now she can eat anything she wants to eat. Keeping the feeding tube out will probably be enough incentive to get her eating as much as possible.
When PT returned this afternoon she was able to walk to the door and back twice. Lynn said she is getting better at doing "laps".
She is pretty worn out by now. John & Suzie are visiting. Melanie, with baby Keeton, are there at the hospital too. They are all enjoying being able to be in her room without having to take turns. It is nice that there are no age restrictions so Elaine can see some of the grandkids now.
We hope and pray that she continues to progress. Busy days like today are always good.
Elaine has been very busy today. Physical therapy helped her get up and she shuffled to a chair and sat in the chair for an hour. Then she shuffled back to her bed.
They were going to do dialysis today but decided not to do it after all. The less often they do dialysis, the better. It allows her kidneys to get stronger. They are hoping her kidneys can eventually do all the work.
Her feeding tube got clogged today. They were scheduled to replace it but decided to keep it out and see how she does. She was able to eat half a bowl of soup and some crackers for lunch. She has been upgraded to a regular diet so now she can eat anything she wants to eat. Keeping the feeding tube out will probably be enough incentive to get her eating as much as possible.
When PT returned this afternoon she was able to walk to the door and back twice. Lynn said she is getting better at doing "laps".
She is pretty worn out by now. John & Suzie are visiting. Melanie, with baby Keeton, are there at the hospital too. They are all enjoying being able to be in her room without having to take turns. It is nice that there are no age restrictions so Elaine can see some of the grandkids now.
We hope and pray that she continues to progress. Busy days like today are always good.
Friday, April 26, 2013
Discussion of CT Scan
A Gastrointestinal doctor just came in to talk to us about the CT scan and the stomach issues mom has had over the past few days. She said that there was some inflammation in mom's lower intestines. This could be contributing to her nausea and other tummy issues
They aren't sure what the exact cause is, but any of the following could be the culprit:
- her radiation treatments
- an infection
- some of her medications
For now they are taking a conservative approach and will change some medications to see if that relieves the symptoms. They also are sending some samples to the lab to help rule out infection.
In other news, with the physical therapists help, mom was able to stand up, take baby steps to a chair and sit there for forty minutes this morning. I'm sure it's nice to get out of the hospital bed once in a while, but it takes a lot of energy to retrain muscles to sit up that long.
Dialysis was done again today. They were able to get two and a half liters of fluids off.
Please keep the prayers coming to help keep her spirits up. Long stays in the hospital can really bring you down. I know we all are feeling the prayers on our family's behalf. Thank you and we love you all.
They aren't sure what the exact cause is, but any of the following could be the culprit:
- her radiation treatments
- an infection
- some of her medications
For now they are taking a conservative approach and will change some medications to see if that relieves the symptoms. They also are sending some samples to the lab to help rule out infection.
In other news, with the physical therapists help, mom was able to stand up, take baby steps to a chair and sit there for forty minutes this morning. I'm sure it's nice to get out of the hospital bed once in a while, but it takes a lot of energy to retrain muscles to sit up that long.
Dialysis was done again today. They were able to get two and a half liters of fluids off.
Please keep the prayers coming to help keep her spirits up. Long stays in the hospital can really bring you down. I know we all are feeling the prayers on our family's behalf. Thank you and we love you all.
Thursday, April 25, 2013
Thursday Update
Today was a bit of an up and down day. My mom (this is Mark typing) was able to get up a few time and take a few steps so that was positive news. She still was not feeling well enough to be able to go outside today. Her tummy issues have been persistent enough to have some cultures done and for her to have a specialist come in and check her out. We are all hopeful that she will be able to overcome this, and keep progressing.
Sunshine
The struggles of the last two days have had to do with Elaine's tummy. She has been feeling some nausea and stomach discomfort so they try to keep her as regular as possible in order to keep her comfortable. Sadly, those remedies have been causing even more discomfort. Last night they decided to do a CT scan in order to know how to move forward. They determined that everything looked good and decided they should let her body process things naturally. Lynn was confident in the way they should go, even before the scan, but they just needed to come to the decision in their own way.
Today seems to be better already. She has been up this morning and sitting in a chair. Her tailbone has been really sore so I'm sure a change of any kind is nice. She might even get to take a wheel chair ride outside later today. I've thought about how much she loves to be outside and how wonderful it will be for her to breath fresh air and feel the sunshine again. That's good medicine for the mind!
We all went to bed concerned last night but when you ask for help with faith, and ask others to do the same, great things happen. Thank you all!
Wednesday, April 24, 2013
Roller Coaster
These past few weeks have been such a roller coaster ride. We've had so many highs and lows. We were so excited to have her finally leave SICU yesterday but as Mark put it today, "she's had a bit of a rough go of it".
This morning Brenda let us know that Elaine hasn't felt very good yesterday or today. Lots of nausea. They did dialysis this morning hoping that would help her feel better. The kidney team came in. They wondered if the toxins that the kidneys normally clear are causing her to feel sick. They hoped dialysis would let them know if that's the issue.
Then Mark texted this tonight:
There have been some stomach problems that they are worried about. They took her down x-ray but still are not sure about one area of her stomach. They are going to do a CT scan later tonight. They feel like this will provide more conclusiveness.
We are hoping & praying they can soon figure out what is going on with her body. We still need many prayers. Thank you for all your love and support. We feel it. We really do. Thank you.
This morning Brenda let us know that Elaine hasn't felt very good yesterday or today. Lots of nausea. They did dialysis this morning hoping that would help her feel better. The kidney team came in. They wondered if the toxins that the kidneys normally clear are causing her to feel sick. They hoped dialysis would let them know if that's the issue.
Then Mark texted this tonight:
There have been some stomach problems that they are worried about. They took her down x-ray but still are not sure about one area of her stomach. They are going to do a CT scan later tonight. They feel like this will provide more conclusiveness.
We are hoping & praying they can soon figure out what is going on with her body. We still need many prayers. Thank you for all your love and support. We feel it. We really do. Thank you.
Tuesday, April 23, 2013
A New Room (4109)
Elaine was moved today, out of ICU and into a much quieter room of her own. She is in room #4109. She can have visitors as long as they are completely healthy. She and Lynn are grateful for the change of scenery and quieter setting. Lynn is eager to spend even more time with her and this room will make it easier. I know that Elaine is happier as well because she has better nights when he is close. What a blessing!
Monday...
The exciting news from yesterday was that they were trying really hard to get a new room for Elaine. She is all clear to leave ICU and move up to the 4th floor but they don't have enough room for her yet. Everyone thought yesterday was the day so we'll keep our fingers crossed that maybe it will happen today. The ICU is not an environment that is conducive to good sleep. A space that is quieter and more private would be a wonderful change for Elaine.
She didn't need dialysis yesterday and won't need it again today.
There isn't a lot more to report for now. I will keep you posted with any new information.
Thanks for all your support!
She didn't need dialysis yesterday and won't need it again today.
There isn't a lot more to report for now. I will keep you posted with any new information.
Thanks for all your support!
Sunday, April 21, 2013
Sunday Update
Elaine has had a good day today. She spent the morning with the physical therapist and was able to stand two times, marched in place and is able to move both arms more than ever before.
The kidney doctors came by this morning and they are pleased with her kidney improvement. She did have to have dialysis today but the doctor is hopeful that this could be the last time. She was pretty sleepy today because of the dialysis so we were grateful the physical therapist came first. It's pretty hard to perform for the physical therapists when she has had dialysis right before.
All in all she maintains her sense of humor. Most times, when the doctors and nurses come by she gives them something to smile about.
The kidney doctors came by this morning and they are pleased with her kidney improvement. She did have to have dialysis today but the doctor is hopeful that this could be the last time. She was pretty sleepy today because of the dialysis so we were grateful the physical therapist came first. It's pretty hard to perform for the physical therapists when she has had dialysis right before.
All in all she maintains her sense of humor. Most times, when the doctors and nurses come by she gives them something to smile about.
Saturday, April 20, 2013
All-Nighters...
It looks like Elaine is going to be able to skip dialysis again today... that's THREE days is a row! The physical therapist has been there already and she was able to meet all his requests.
Elaine didn't feel great last night. Lynn was able to stay until 9:00pm and then Mark stayed the rest of the night with her until Lynn returned at 5:30 this morning. It was a restless night but Mark said it was a treat to pull an all-nighter with his mom. He said that these are times he will never forget. At one point in the night Mark had fallen asleep in the chair by her bed. When he opened his eyes she was looking at him and said, "you are such a sweetheart." Even as a grown man, those are words that you love to hear from your mom.
Elaine has always been a caretaker throughout her life. I'm sure that being the recipient of care isn't easy for her but what a special time for all of us to be able to give a little bit back to her. There are so many of you that have given of yourselves through prayers, letters and cards, and your time. It all means so much!
Elaine didn't feel great last night. Lynn was able to stay until 9:00pm and then Mark stayed the rest of the night with her until Lynn returned at 5:30 this morning. It was a restless night but Mark said it was a treat to pull an all-nighter with his mom. He said that these are times he will never forget. At one point in the night Mark had fallen asleep in the chair by her bed. When he opened his eyes she was looking at him and said, "you are such a sweetheart." Even as a grown man, those are words that you love to hear from your mom.
Elaine has always been a caretaker throughout her life. I'm sure that being the recipient of care isn't easy for her but what a special time for all of us to be able to give a little bit back to her. There are so many of you that have given of yourselves through prayers, letters and cards, and your time. It all means so much!
Friday, April 19, 2013
A New Visitor
There is a sign in the hall before you get to ICU that says that all visitors must be 14 years of age in order to enter. Our boys have been very patient as we have come and gone in order to be with Grandma but they also ask, almost daily, when she will be well enough for them to go and see her.
Well, Grandpa has become quite close to the staff and they told him that it would be okay to have a visitor as long as they were 12 years old. Our oldest son, Ayden, just turned twelve a month ago. I think Grandpa was just as excited to tell Ayden he could come and visit as Ayden was to go. So on Monday he got to head to the hospital to see Grandma and she was pretty happy to see him... Mark reported that Ayden got the biggest smile from Grandma when he walked in.
Well, Grandpa has become quite close to the staff and they told him that it would be okay to have a visitor as long as they were 12 years old. Our oldest son, Ayden, just turned twelve a month ago. I think Grandpa was just as excited to tell Ayden he could come and visit as Ayden was to go. So on Monday he got to head to the hospital to see Grandma and she was pretty happy to see him... Mark reported that Ayden got the biggest smile from Grandma when he walked in.
Update
Elaine was up a couple times today and even attempted to march in place. She was able to avoid dialysis for the second day in a row because her kidneys are working better. Yay! They did an ultrasound on her legs to make sure there weren't any clots and she passed with flying colors. Today was a little long because she felt queasy but she shows so much strength as she smiles through it. Bishop Atkinson and his wife stopped by this evening and it meant so much to both Lynn and Elaine. Thank you!
Love
There is less to report these days. That's a good thing because Elaine's days are becoming more predictable. Doctors, nurses, physical therapists, and specialists come and go and while we are grateful for fewer events, that makes for long days (and nights).
As mentioned before, in the last three weeks there have been many miracles, tender mercies and, I must include, tender moments. I have seen a love that I've only seen before a few times. That is the sweet exchange that takes place between Lynn and Elaine each time their eyes meet. So much is said without a single word being leaving their lips. There is tenderness, understanding, compassion, empathy and adoration that must only come from enduring life's hardest moments together.
As I've walked through ICU, past each room, there are many rooms that don't have anyone in them except the patient lying in the bed. I don't know their situations but what I do know is that Elaine has never had to endure a day alone because Lynn has been by her side every moment of each day.
We have had the pleasure of having Grandpa stay with us for the last three weeks but that doesn't mean he has been here that much. He stays at the hospital until they kick him out around 7:00 pm for shift change. He comes home, eats dinner, spends time hugging and talking to our boys and then he heads to bed. Then, while most of the world is fast asleep (around 4:30 am), he showers and sneaks out so that he can be there when Elaine awakes and they face the day together.
What a blessing it has been to witness such love and adoration. It's truly a love to strive for. A love that can carry each other through hard times and a love that will carry on through all eternity.
As mentioned before, in the last three weeks there have been many miracles, tender mercies and, I must include, tender moments. I have seen a love that I've only seen before a few times. That is the sweet exchange that takes place between Lynn and Elaine each time their eyes meet. So much is said without a single word being leaving their lips. There is tenderness, understanding, compassion, empathy and adoration that must only come from enduring life's hardest moments together.
As I've walked through ICU, past each room, there are many rooms that don't have anyone in them except the patient lying in the bed. I don't know their situations but what I do know is that Elaine has never had to endure a day alone because Lynn has been by her side every moment of each day.
We have had the pleasure of having Grandpa stay with us for the last three weeks but that doesn't mean he has been here that much. He stays at the hospital until they kick him out around 7:00 pm for shift change. He comes home, eats dinner, spends time hugging and talking to our boys and then he heads to bed. Then, while most of the world is fast asleep (around 4:30 am), he showers and sneaks out so that he can be there when Elaine awakes and they face the day together.
What a blessing it has been to witness such love and adoration. It's truly a love to strive for. A love that can carry each other through hard times and a love that will carry on through all eternity.
Thursday, April 18, 2013
Superstar
This is Aaron's update for today:
Mom had a good night. Her kidneys are starting to show signs of activity and she sat up with some help.
She's also feeling a little more optimistic this morning. I told her the only way to get home is to build strength by eating and physical therapy so she sits and moves her feet and legs when she is awake. She told me that she wants to walk down the hall and help the other patients.
Doctor Selzman (the lead cardiologist) told her this morning that she is a superstar with the progress she is making.
Mom had a good night. Her kidneys are starting to show signs of activity and she sat up with some help.
She's also feeling a little more optimistic this morning. I told her the only way to get home is to build strength by eating and physical therapy so she sits and moves her feet and legs when she is awake. She told me that she wants to walk down the hall and help the other patients.
Doctor Selzman (the lead cardiologist) told her this morning that she is a superstar with the progress she is making.
Wednesday, April 17, 2013
The Power of Prayer
Sometimes progress seems to be happening at a snail's pace.
Despair comes easy when you are stuck in a hospital bed for weeks. I know my
mom has moments where she feels like she will live in that hospital forever,
but the important thing is that progress is
happening. I can see her getting stronger each time I visit and it is a
world of difference from where we were a couple weeks ago.As always thank
you for your prayers. I know I personally have been focusing my prayers on
helping my mom have patience, hope, and the ability see her own progress. I
think if we all join in this effort, it could be a huge help. I want her
to see the wonderful improvements that we are seeing.
After the Pacemaker Operation
Mom didn't seemed bothered today at all about her new incision.
Although, her tailbone was a source of aggravation after having to lay on an
operating table for several hours. She has one restriction after surgery. Her
left arm is tied to the side of her bed as a reminder to not lift her arm.
Apparently it takes at least twenty-four hours before the pacemaker is fully
situated. Any big movements with her arm (like lifting it up to her head) could
knock wires loose and require them to operate again. Nobody wants that.
My dad told me
that this morning they brought in some sort of computer equipment and
"talked" to mom's pacemaker. The doctors are able to see the what work
the pacemaker has recorded and make sure it is functioning properly. His
understanding was that once she is out of the hospital and has resumed normal
life she will need to have her pacemaker checked once or twice a year for
upkeep.
Tired, but Doing Good!
I was able to go spend a few hours with mom and dad in the hospital today. When I arrived she was just finishing up another round of dialysis. They have her on an every other day dialysis schedule now instead of everyday. Hopefully her kidney will be able to bounce back soon so she can be finished with it. Dialysis always leaves mom very tired afterwards.
She was able to get a little rest, but later was really put to the test. A physical therapist came in and woke her up (I felt so bad.) so she could work on standing. She understandably was really reluctant because she was so tired, but agreed when the physical therapist wouldn't take no for an answer. He told her that she didn't have to like him now, but could appreciate him later when she was walking.
During the process of helping her stand a second time, one of her lines on her arm started dripping. To keep everything sanitary they were forced to change robes and bedding. While they switched out the bedding she had to stand the whole time. By the end she seemed very sore and shaky, but the result was three times standing!! A new record!! Once they got her settled back in bed, her head hit the pillow and she was out like a light.
She was able to get a little rest, but later was really put to the test. A physical therapist came in and woke her up (I felt so bad.) so she could work on standing. She understandably was really reluctant because she was so tired, but agreed when the physical therapist wouldn't take no for an answer. He told her that she didn't have to like him now, but could appreciate him later when she was walking.
During the process of helping her stand a second time, one of her lines on her arm started dripping. To keep everything sanitary they were forced to change robes and bedding. While they switched out the bedding she had to stand the whole time. By the end she seemed very sore and shaky, but the result was three times standing!! A new record!! Once they got her settled back in bed, her head hit the pillow and she was out like a light.
Pacemaker Update
Here is Aaron's update from last night.
Doctor just came and said that it went well. It took longer then expected because of the scarring around her aorta and ventrical from the previous surgeries. She has a press bandage over the staples to keep her from bleeding because her platelets are low but it was a success.
Thank you again for your prayers.
Doctor just came and said that it went well. It took longer then expected because of the scarring around her aorta and ventrical from the previous surgeries. She has a press bandage over the staples to keep her from bleeding because her platelets are low but it was a success.
Thank you again for your prayers.
Tuesday, April 16, 2013
Pacemaker
The doctors decided to put the pacemaker in today. Elaine will be going in for the procedure around 5:30 pm. Please pray that all goes well.
We will post an update when we hear from the doctors.
We will post an update when we hear from the doctors.
Monday, April 15, 2013
Miracles & Hard Work
Elaine has had a good day. They did dialysis and that really wears her out. Happily it only happens every other day. They took off 3 liters of liquid and by looking, most of the swelling has gone. The doctors came by and said she looks good and is doing well. She is on a little bit of blood pressure med to keep her blood pressure up but that is her only IV. She stood up twice today and she held her frame straight. Everyone was very impressed! If she hadn't just done dialysis then they figured she might have been able to take a couple steps. I'm sure she will do that soon. The physical therapist was really impressed with her strength and said she gets stronger every day.
Yesterday one of the doctors asked Elaine if there was anything she needed from him before he left. Her response, " a miracle." He told her that she has already had many miracles and now it will just take hard work. She is more than willing to work hard! I told her that while hard work is needed, we won't stop praying for miracles. Thank you all for all your prayers... they are working!
Sunday, April 14, 2013
Brenda's Update for Today
I was so happy when I walked in her room today. She looks really good and even witty. Her smile seemed bigger and brighter. She was less jaundice which made me happy.
While I was there the cardio technician came to do an echo cardiogram. I asked the difference between that and an EKG?? He said the EKG is the electrical functions, echo cardiogram is the mechanical (plumbing). It is done by ultrasound and the technician was amazing. He made it make perfect sense for Lynn and I... he said cardiologists are basically electricians or plumbers... the heart functions exactly like a toilet! The tanks fill, the valve opens, blood flows from heart. When it's empty the valve closes and the tank again fills. We got to see her entire heart, from every angle. We could even see the new valve from each side and even looked straight into it. It was AMAZING!
He explained that there is a mean average for the squeeze of the heart. It's typically 50-60%. That's the amount of blood the heart squeezes out each time it compresses. Pre-surgery was 10-20% for Elaine, today it was 36%. He couldn't tell us what was good or bad (legal stuff) but I could tell that he and the nurse were both pretty pleased.
She has been drinking water, ginger-ale, orange juice and cranberry juice. That has to be good for her kidney's, right? She ate a little cream of wheat and mashed potatoes while I was there. They are going to order real food for dinner and see how she does with that. She seems ready. It will be so nice once the feeding tube comes out.
They are now giving her a shot once a week the will help her kidney's produce red blood cells and function normally. It's easier on her than what they had previously been giving her on a daily basis.
No dialysis today. YAY!
She is breathing like a champ! She had just done 45 blows when I arrived this morning.
The Dr. said that once she can walk, she can walk right out of ICU!
She is moving her limbs more. She scratches her healing wounds and rubs her head with her left arm/hand. Lynn had her move her move her right arm for me and she pulled it up on her tummy.
They removed all but one IV and even that is barely flowing. If they can remove that then some of the tubes and ports on her neck can come out.
She works hard for the physical therapists and is definitely getting stronger.
Love you all!
-Brenda
While I was there the cardio technician came to do an echo cardiogram. I asked the difference between that and an EKG?? He said the EKG is the electrical functions, echo cardiogram is the mechanical (plumbing). It is done by ultrasound and the technician was amazing. He made it make perfect sense for Lynn and I... he said cardiologists are basically electricians or plumbers... the heart functions exactly like a toilet! The tanks fill, the valve opens, blood flows from heart. When it's empty the valve closes and the tank again fills. We got to see her entire heart, from every angle. We could even see the new valve from each side and even looked straight into it. It was AMAZING!
He explained that there is a mean average for the squeeze of the heart. It's typically 50-60%. That's the amount of blood the heart squeezes out each time it compresses. Pre-surgery was 10-20% for Elaine, today it was 36%. He couldn't tell us what was good or bad (legal stuff) but I could tell that he and the nurse were both pretty pleased.
She has been drinking water, ginger-ale, orange juice and cranberry juice. That has to be good for her kidney's, right? She ate a little cream of wheat and mashed potatoes while I was there. They are going to order real food for dinner and see how she does with that. She seems ready. It will be so nice once the feeding tube comes out.
They are now giving her a shot once a week the will help her kidney's produce red blood cells and function normally. It's easier on her than what they had previously been giving her on a daily basis.
No dialysis today. YAY!
She is breathing like a champ! She had just done 45 blows when I arrived this morning.
The Dr. said that once she can walk, she can walk right out of ICU!
She is moving her limbs more. She scratches her healing wounds and rubs her head with her left arm/hand. Lynn had her move her move her right arm for me and she pulled it up on her tummy.
They removed all but one IV and even that is barely flowing. If they can remove that then some of the tubes and ports on her neck can come out.
She works hard for the physical therapists and is definitely getting stronger.
Love you all!
-Brenda
Proud of her Grandkids
My nephew, Esteban, (Aaron and Colette's oldest) just went to his first prom on Friday.
(Colette--insert prom picture here, you know Este would LOVE that to happen :)
I got a picture sent to my phone while I was at the hospital of him and his lovely date all dressed up and ready to go. I immediately showed the picture to my mom. The next doctors that came in to talk to her were first required to see said picture and hear the pride in her voice as she showed off her oldest grandchild before they could get on with their business.
Between my dad and my mom, I feel like the whole hospital will soon know all of our life stories. They love talking about their family, sharing pictures, and especially showing off the grandkids.
(Colette--insert prom picture here, you know Este would LOVE that to happen :)
I got a picture sent to my phone while I was at the hospital of him and his lovely date all dressed up and ready to go. I immediately showed the picture to my mom. The next doctors that came in to talk to her were first required to see said picture and hear the pride in her voice as she showed off her oldest grandchild before they could get on with their business.
Between my dad and my mom, I feel like the whole hospital will soon know all of our life stories. They love talking about their family, sharing pictures, and especially showing off the grandkids.
My mom's love/hate relationship with the respiratory therapist
Colette has mentioned my mom's determination to take enough breaths to make the respiratory therapist happy. She does this with what appears to be little effort every time one of them comes in. (I think she's showing off. She holds half of the breaths out about three seconds longer than needed.)
Besides the breathing they also try and get her to cough as much as she can and get her lungs cleared out a little better.The coughing part has been really hard. Throughout the day she tried several times, with minimal success. During one of these breathing/coughing sessions the respiratory therapist and my dad were both eagerly leaning over my mom's bed, urging her to try and cough.
No cough came, but she whispered something. I came closer to try and translate. It went something like this..."You guys are..?..going to heaven." I laughed, turned around and informed the nurse and my dad, "Well either she said you guys are going to heaven or that you are NOT going to heaven. I'm not sure if she is grateful or mad at you right now. Let's hope it's grateful."
Later she coughed and made everyone in the room jump with surprise. Of course the respiratory therapist was nowhere in sight.
Saturday, April 13, 2013
Daily News
I have mentioned the need to "pull fluids off" before. Let me explain that better. Over that past two weeks, she has had so many IV fluids and medications put into her body that it caused her body to swell as the fluid built up in the tissues. We estimate that she gained a total of 40 pounds of fluids at one point. Now the doctors have to perform this fine balancing act of removing the fluids out of her tissues (by using dialysis) without forcing her blood pressure to crash. They were able to take two liters off on today's dialysis (just over 4 pounds). She is getting closer to her starting weight. We estimate she is down about 13 pounds.
She started out with 4 chest tubes, which aid in draining fluid build up in her chest. Now she is down to only two. The doctor said, "That means she's winning the battle. "
The nurse forced her to sit up in the chair for about half an hour today. We probably don't realize how many muscles and the strength required to do that. Just to maintain balance is uncomfortable for her. It exhausted her.
Later on she said she felt like some ice cream so Lynn went down to the cafeteria for some frozen yogurt. She ate several spoonfuls. That is the most she has eaten of anything so far.
She stood again several times today. The next hurdle she needs to cross is to stand and walk and eat more food by mouth. We still have a long way to go but she is improving slowly.
She started out with 4 chest tubes, which aid in draining fluid build up in her chest. Now she is down to only two. The doctor said, "That means she's winning the battle. "
The nurse forced her to sit up in the chair for about half an hour today. We probably don't realize how many muscles and the strength required to do that. Just to maintain balance is uncomfortable for her. It exhausted her.
Later on she said she felt like some ice cream so Lynn went down to the cafeteria for some frozen yogurt. She ate several spoonfuls. That is the most she has eaten of anything so far.
She stood again several times today. The next hurdle she needs to cross is to stand and walk and eat more food by mouth. We still have a long way to go but she is improving slowly.
Friday, April 12, 2013
Amazing!
Report from Lauren who is at the hospital:
Just finished the first test of intermittent dialysis. It went amazing. They got 4 liters of fluid off and her blood pressure actually improved instead of dropping. Because her BP is looking so good they may even be able to take her off the blood pressure medication.
For now the plan is to do the dialysis everyday. It makes her really tired, but will make a huge difference. Hopefully she will feel better with the fluid coming off.
Just finished the first test of intermittent dialysis. It went amazing. They got 4 liters of fluid off and her blood pressure actually improved instead of dropping. Because her BP is looking so good they may even be able to take her off the blood pressure medication.
For now the plan is to do the dialysis everyday. It makes her really tired, but will make a huge difference. Hopefully she will feel better with the fluid coming off.
Information
More info on Elaine: they just started the intermittent dialysis. So far, her blood pressure has been steady so they are hopeful. The goal is to get her to every other day dialysis and then no dialysis.
She just ate a few bites of toast and some applesauce, they are probably going to go back to using the tube feeding because she isn't getting enough calories orally, but they are bringing a bigger variety of foods to her and will keep trying.
A doctor came in and said he was going to keep the physical therapists on her and work towards getting her to walk. She stood twice today. Each day she is getting stronger.
Elaine also informed the doctors she was getting a new dog, when they asked her what kind she said a labradoodle. Lauren laughed about the labradoodle statement, but apparently they really are getting one when she gets home.
She just ate a few bites of toast and some applesauce, they are probably going to go back to using the tube feeding because she isn't getting enough calories orally, but they are bringing a bigger variety of foods to her and will keep trying.
A doctor came in and said he was going to keep the physical therapists on her and work towards getting her to walk. She stood twice today. Each day she is getting stronger.
Elaine also informed the doctors she was getting a new dog, when they asked her what kind she said a labradoodle. Lauren laughed about the labradoodle statement, but apparently they really are getting one when she gets home.
Contest
When we are sitting in the SICU all day every day we have to find something to help lighten our moods. We started a little contest to see who can get the best parking spot in the visitor parking garage. Lynn usually wins because he goes in to the hospital between 5:00-6:00 in the morning. He goes in as soon as he wakes up and leaves at night when they kick him out.
However, Brenda won the contest yesterday when she walked away with the #1 parking spot. Congratulations Brenda!!!
However, Brenda won the contest yesterday when she walked away with the #1 parking spot. Congratulations Brenda!!!
A Rug
The lead heart surgeon asked Elaine how she felt this morning. She replied,"Like a rug." I think Brenda is right, Elaine is frustrated that her body hasn't caught up to her determination.
She is making progress. They took her off the dialysis pump yesterday. She is doing well without it. She will still need intermittent dialysis for a few weeks then they can tell how damaged her kidneys may be.
They also took her off oxygen. She had been on oxygen since they took out the ventilator. Her oxygen levels remain high even without the extra help.
They are working really hard to strengthen her body. They said they were going to unleash physical therapy on her today. They need her to gain strength and eat more so that feeding tube can finally come out.
She told Lynn the other night that they did an operation on her while he was gone. In actuality, they only moved the blood port from one artery to another. Her body is covered in bruises from all the poking and prodding they have done in the past two weeks. No wonder she feels like rug. Poor lady.
She is making progress. They took her off the dialysis pump yesterday. She is doing well without it. She will still need intermittent dialysis for a few weeks then they can tell how damaged her kidneys may be.
They also took her off oxygen. She had been on oxygen since they took out the ventilator. Her oxygen levels remain high even without the extra help.
They are working really hard to strengthen her body. They said they were going to unleash physical therapy on her today. They need her to gain strength and eat more so that feeding tube can finally come out.
She told Lynn the other night that they did an operation on her while he was gone. In actuality, they only moved the blood port from one artery to another. Her body is covered in bruises from all the poking and prodding they have done in the past two weeks. No wonder she feels like rug. Poor lady.
Thursday, April 11, 2013
Very Aware
For just waking up after major heart surgery, Elaine is very aware. Her memory of these past two weeks is a little vague but she remembers other things. When Mark walked into the hospital room this morning, she said to him, "You're supposed to be at school." (The physical therapist was quite amused that she was getting after Mark.) I tried to warn him that he would be in trouble with his parents if he used a personal day to visit her in the hospital. He obviously didn't listen to me.
A month or so ago, I told Elaine that I was was running a half marathon on April 6th. I missed it because of my emergency trip to Utah. I was so surprised yesterday when she asked me how the race went. I just told her it was over. I don't want her to feel bad that I missed it. I was amazed that she remembered something I mentioned months ago.
She made progress today. She was able to eat two spoonfuls if applesauce and half a saltine cracker. They are working on getting rid of the feeding tube.
Also they did a cognitive test, that was about 45 minutes long. She did ok, with no huge deficits. There were some questions (math questions) that confused her but it might have been that she was just tired then too. They did the cognitive test right after physical therapy. (Personally I get confused with math questions and I'm not even a patient in ICU.) She is impressive!!!
They are still deciding when to put in the pacemaker. (I feel like a broken record player). They made an adjustment to her blood thinning medication today. They test her blood in the lab every few hours. This place runs like well oiled machine. They stay on top of everything. It is quiet the balancing act they keep up with round the clock. We are so very grateful that she is in such good hands.
We know this whole process will just take time. There will be a lot of baby steps along the way. Thank you for sharing with us as we celebrate even the smallest improvements.
A month or so ago, I told Elaine that I was was running a half marathon on April 6th. I missed it because of my emergency trip to Utah. I was so surprised yesterday when she asked me how the race went. I just told her it was over. I don't want her to feel bad that I missed it. I was amazed that she remembered something I mentioned months ago.
She made progress today. She was able to eat two spoonfuls if applesauce and half a saltine cracker. They are working on getting rid of the feeding tube.
Also they did a cognitive test, that was about 45 minutes long. She did ok, with no huge deficits. There were some questions (math questions) that confused her but it might have been that she was just tired then too. They did the cognitive test right after physical therapy. (Personally I get confused with math questions and I'm not even a patient in ICU.) She is impressive!!!
They are still deciding when to put in the pacemaker. (I feel like a broken record player). They made an adjustment to her blood thinning medication today. They test her blood in the lab every few hours. This place runs like well oiled machine. They stay on top of everything. It is quiet the balancing act they keep up with round the clock. We are so very grateful that she is in such good hands.
We know this whole process will just take time. There will be a lot of baby steps along the way. Thank you for sharing with us as we celebrate even the smallest improvements.
Progressing
Elaine had another good night last night. The nurse reported that her heart was beating along steady all night without a problem. They will probably still put a permanent pacemaker in just in case it goes a little crazy again.
They are going to try to get her off the continuous dialysis pump today. That is the last big obstacle to get over before she can leave SICU. Hopefully thing go well as she becomes completely dependent on her own body. They will continue to monitor her very closely and she will only leave if she is stable enough. After SICU, she will probably be transferred to the cardiovascular rehab unit in this hospital.
They are concerned about her right arm. It is very weak and she has only a little movement in it. They will work to strengthen it when physical therapy and occupational therapy come in.
On a happy note, she stood up with support twice yesterday. They are really working her to getting going again.
The hardest part is when she wants us to move her around in bed to be more comfortable. She still has so many tubes and monitors covering her body that we can't move her much. Only the medical staff can move her. I don't think she fully realizes everything that is still going on with her body. She wants to go home so badly. This is very frustrating for her.
Lynn told me today that it reminded him of our relationship with Heavenly Father. Many times we want something that Heavenly Father knows is not in our best interest. He sees the whole picture when we only see what is in front of us. I wonder if Heavenly Father is sad when sometimes He answers "No" or even when He answers "Not yet". I know Heavenly Father will always do whatever is right. He is in total control.
This experience has been one of stress and exhaustion but, it has also strengthened our bonds as a family and with our Lord. There are so many lessons to be learned from these experiences.
They are going to try to get her off the continuous dialysis pump today. That is the last big obstacle to get over before she can leave SICU. Hopefully thing go well as she becomes completely dependent on her own body. They will continue to monitor her very closely and she will only leave if she is stable enough. After SICU, she will probably be transferred to the cardiovascular rehab unit in this hospital.
They are concerned about her right arm. It is very weak and she has only a little movement in it. They will work to strengthen it when physical therapy and occupational therapy come in.
On a happy note, she stood up with support twice yesterday. They are really working her to getting going again.
The hardest part is when she wants us to move her around in bed to be more comfortable. She still has so many tubes and monitors covering her body that we can't move her much. Only the medical staff can move her. I don't think she fully realizes everything that is still going on with her body. She wants to go home so badly. This is very frustrating for her.
Lynn told me today that it reminded him of our relationship with Heavenly Father. Many times we want something that Heavenly Father knows is not in our best interest. He sees the whole picture when we only see what is in front of us. I wonder if Heavenly Father is sad when sometimes He answers "No" or even when He answers "Not yet". I know Heavenly Father will always do whatever is right. He is in total control.
This experience has been one of stress and exhaustion but, it has also strengthened our bonds as a family and with our Lord. There are so many lessons to be learned from these experiences.
Wednesday, April 10, 2013
Positive People
The best part of updates now is that I get to write what SHE says instead of just what the doctor says. Yahoo!!
This afternoon, the nurse was talking to herself while looking at some of Elaine's lab results and asked out loud, "Why is this positive?" Elaine replied, "Because we are positive people. "
It is so nice to see all these pumps and machines leave the room. However, it is hard for her to see all the improvement she is making. She is disappointed that things aren't moving along faster. It's frustrating for her when she can't move her arm or when it exhausts her to simply sit for a few minutes.
Elaine and I were talking today about all the people who are praying for her. She was so moved by the thought of the concern that everyone had. She asked me to tell you all, thank you. On behalf of the family, we say thank you as well.
I think if we all remain positive people, she'll be home before we know it.
This afternoon, the nurse was talking to herself while looking at some of Elaine's lab results and asked out loud, "Why is this positive?" Elaine replied, "Because we are positive people. "
It is so nice to see all these pumps and machines leave the room. However, it is hard for her to see all the improvement she is making. She is disappointed that things aren't moving along faster. It's frustrating for her when she can't move her arm or when it exhausts her to simply sit for a few minutes.
Elaine and I were talking today about all the people who are praying for her. She was so moved by the thought of the concern that everyone had. She asked me to tell you all, thank you. On behalf of the family, we say thank you as well.
I think if we all remain positive people, she'll be home before we know it.
Sanitize, Sanitize
We use hand sanitizer every time we enter SICU, every time we enter her room, every time leave her room, and every time we touch her hand. By the end of the day we have layers of slime build up on our hands that we have to keep under running water in order to rinse it off.
I'm not complaining. I will do whatever it takes to keep her healthy and us healthy through this whole process. I'm simply sharing some tidbits of life here in the hospital.
I'm not complaining. I will do whatever it takes to keep her healthy and us healthy through this whole process. I'm simply sharing some tidbits of life here in the hospital.
Evaluation
Today will be a day of evaluation. Speech therapy has already been in to evaluate her ability to swallow. She passed their test. She was put in a puréed diet. She will be re-evaluated on a daily basis until she is eating enough on her own that they can remove the feeding tube.
She was worried that she "failed her cognitive test" but the nurse explained to her that by that statement she proved she had not.
She will be evaluated by physical therapy and occupational therapy for strength and range of motion. Even sitting up is difficult because her core muscles have lost so much strength.
They continue to monitor her vital signs (blood pressure, heart rate, respirations) very closely. I asked the nurse when we will know she is out of the woods. She told me as long as she's in ICU, she's not out of the woods. (That's not the answer I wanted to hear. )
So many little things we take for granted every day, such as sitting up, breathing, swallowing, and moving an arm. It makes me grateful to our Heavenly Father who gives us life. I look forward to the time when these things once again in become second nature for Elaine as well.
She was worried that she "failed her cognitive test" but the nurse explained to her that by that statement she proved she had not.
She will be evaluated by physical therapy and occupational therapy for strength and range of motion. Even sitting up is difficult because her core muscles have lost so much strength.
They continue to monitor her vital signs (blood pressure, heart rate, respirations) very closely. I asked the nurse when we will know she is out of the woods. She told me as long as she's in ICU, she's not out of the woods. (That's not the answer I wanted to hear. )
So many little things we take for granted every day, such as sitting up, breathing, swallowing, and moving an arm. It makes me grateful to our Heavenly Father who gives us life. I look forward to the time when these things once again in become second nature for Elaine as well.
At Her Side
Now that Elaine is more alert and interactive, Lynn has not left her side whenever he is here in the hospital.
He moved his chair to her bedside so he can hold her hand. He reads his Kindle while she sleeps and listens to her every word while she is awake.
He moved his chair to her bedside so he can hold her hand. He reads his Kindle while she sleeps and listens to her every word while she is awake.
X Marks the Spot
The nurses need to often check for a pulse in her feet in order to determine that her heart is circulating the blood properly. To make this easier they marked the spot where it is easiest to find the pulse with an X. Her heart seems to be circulating the blood fine all on its own.
We are still waiting word on when the permanent pacemaker will be put in. She has an external one now for the few times her heart goes a little crazy.
For the most part the doctors are amazed at her recovery. On Monday afternoon her heart stopped beating momentarily. The doctors and nurses came running with the crash cart in tow. Twenty-four hours later she was sitting up in bed (These $35,000 hospital beds convert to a recliner.) She was just sitting there watching all the activity down the hall.
The doctors are very happy with the rate of her recovery and so are we.
We are still waiting word on when the permanent pacemaker will be put in. She has an external one now for the few times her heart goes a little crazy.
For the most part the doctors are amazed at her recovery. On Monday afternoon her heart stopped beating momentarily. The doctors and nurses came running with the crash cart in tow. Twenty-four hours later she was sitting up in bed (These $35,000 hospital beds convert to a recliner.) She was just sitting there watching all the activity down the hall.
The doctors are very happy with the rate of her recovery and so are we.
Ticket Home
The nurse told her yesterday that this device was her ticket home. She has to breathe in and out of it ten times every hour. It forces her to take deep breaths. Knowing this was her way home she asked to do it again ten minutes later.
She wanted to sit up as soon as she was able. Her next question was, "When are we leaving in the morning?" She obviously doesn't realize how many wires, tubes, and monitors she still has attached to her body.
I told her this farm girl from Idaho was going to show these city nurses what true determination is.
She wanted to sit up as soon as she was able. Her next question was, "When are we leaving in the morning?" She obviously doesn't realize how many wires, tubes, and monitors she still has attached to her body.
I told her this farm girl from Idaho was going to show these city nurses what true determination is.
Tuesday, April 9, 2013
It's out!
The ventilator is out!! That is a huge step in the right direction. She is doing great breathing on her own.
The first thing she said is, "I want to go home." They asked her where home is and she said, "Franklin, Idaho." They asked her where she was and she said, "University of Utah." They asked her, while pointing to Lynn, "Who's this guy?" She replied, "The best."
The first thing she said is, "I want to go home." They asked her where home is and she said, "Franklin, Idaho." They asked her where she was and she said, "University of Utah." They asked her, while pointing to Lynn, "Who's this guy?" She replied, "The best."
Curious
Mark & Brenda's boys were curious where everyone was hanging out over the weekend so they decided to come visit. They can only go as far as the waiting room, but it was so nice to see them again.
Room with a View
Here is photo of the view from Elaine's window. This is the perfect room for her to be in. We all know she would rather have a view of the mountains than a view of the city.
Love Notes
All the grandchildren (except those not enough to hold a crayon) wrote Grandma a love note. We are hoping to hang them up in her room eventually.
Morning Report
Elaine's heart beat had a few more episodes of irregularity overnight. Each time they were able to bring it back to normal. The cardiologist is starting to discuss the possibility of a permanent internal pacemaker. With the ECMO out, she has been upgraded to NOT being the most critical patient on the floor. Yeah!!!
She is tolerating the new nutritional formula better. This is great news because she really needs those calories to help her body heal. They have stopped the IV pain medication and is starting to give it to her with her feedings. This medication will last longer and it is another step in the right direction. We no longer have to dress in gowns and wear gloves whenever we are in her room.
She was moving her feet spontaneously this morning. She moves her arms less but she has a lot of tubes in and out of them. What we really need for her to do is to lift her head off of the pillow. When she can do that, they can take the ventilator out. She has really low settings now but, she needs to be able to move her head before the vent can come out. Once it's out, she will need to prove she can swallow on her own and take a deep breath in order for it to stay out.
She is still on the continuous dialysis. They are hoping that if her heart rate stabilizes then they can start to remove some of the fluid that is building up in her tissues. Before she can leave SICU she will need to be upgraded to intermittent dialysis.
She has been laying flat on her back for almost two weeks. In that time she has already lost 20% of her strength. She will need some rehab to not only build strength in her heart but also build strength in her entire body.
She drifts in and out of sleep. We let her sleep most of the time so her body can rest and heal. It is so fun to interact with her. If we ask the right question she responds by nodding/shaking her head. The other night, the nurse could tell she needed something so they played the guessing game. The nurse eventually asked if she wanted her husband and Elaine nodded yes.
We are taking it a day at a time. Words cannot express our appreciation for your love and concern. Thank you.
She is tolerating the new nutritional formula better. This is great news because she really needs those calories to help her body heal. They have stopped the IV pain medication and is starting to give it to her with her feedings. This medication will last longer and it is another step in the right direction. We no longer have to dress in gowns and wear gloves whenever we are in her room.
She was moving her feet spontaneously this morning. She moves her arms less but she has a lot of tubes in and out of them. What we really need for her to do is to lift her head off of the pillow. When she can do that, they can take the ventilator out. She has really low settings now but, she needs to be able to move her head before the vent can come out. Once it's out, she will need to prove she can swallow on her own and take a deep breath in order for it to stay out.
She is still on the continuous dialysis. They are hoping that if her heart rate stabilizes then they can start to remove some of the fluid that is building up in her tissues. Before she can leave SICU she will need to be upgraded to intermittent dialysis.
She has been laying flat on her back for almost two weeks. In that time she has already lost 20% of her strength. She will need some rehab to not only build strength in her heart but also build strength in her entire body.
She drifts in and out of sleep. We let her sleep most of the time so her body can rest and heal. It is so fun to interact with her. If we ask the right question she responds by nodding/shaking her head. The other night, the nurse could tell she needed something so they played the guessing game. The nurse eventually asked if she wanted her husband and Elaine nodded yes.
We are taking it a day at a time. Words cannot express our appreciation for your love and concern. Thank you.
Monday, April 8, 2013
Reality
The excitement from this afternoon soon turned into harsh reality. She had a few episodes of difficulty maintaining a steady heart rate this afternoon. They were able to correct the heartbeat with medications and the external pacemaker. At one point her heart stopped momentarily. The doctors and nurses came running into the room with the crash cart in tow. They were able to return her heart to normal in a short time. She is still moving in the right direction, but the reality is that it will just be a long bumpy road.
Excitement
Great news! She came out of surgery with her own heartbeat. The procedure went as well as expected.
She was put back on some of the heart medications (rocket fuel). She has lots of monitors keep track of her every heart beat. As of right now, the pacemaker is off and she is maintaining a steady heartbeat all on her own. She has pulses in her all of her extremities.
The surgeon came in and he was not just optimistic but seemed quite excited about her progress. We are excited as well!!
We know we still have a long road to go. We are learning there are ups and downs as we go along. Thank you for your love & support.
The number of people who are interested in following this blog has been overwhelming. We have decided to make the blog public which means that anybody who would like to follow her progress can do so by simply using the following address: theheartofelaine.blogspot.com
She was put back on some of the heart medications (rocket fuel). She has lots of monitors keep track of her every heart beat. As of right now, the pacemaker is off and she is maintaining a steady heartbeat all on her own. She has pulses in her all of her extremities.
The surgeon came in and he was not just optimistic but seemed quite excited about her progress. We are excited as well!!
We know we still have a long road to go. We are learning there are ups and downs as we go along. Thank you for your love & support.
The number of people who are interested in following this blog has been overwhelming. We have decided to make the blog public which means that anybody who would like to follow her progress can do so by simply using the following address: theheartofelaine.blogspot.com
Not Alone
Lynn has been staying with Mark & Brenda in Kaysville while Elaine is in the hospital.
Brenda has been providing meals and washing his clothes. Brenda is not the only only one who takes care of Lynn. Trey leaves his animals on Grandpa's bed "so he won't have to sleep alone".
What a sweet boy to think of Grandpa!
Brenda has been providing meals and washing his clothes. Brenda is not the only only one who takes care of Lynn. Trey leaves his animals on Grandpa's bed "so he won't have to sleep alone".
What a sweet boy to think of Grandpa!
Big Day
Today will be a big day for Elaine. They will take her into the OR where they will remove the ECMO pump. They will run a series of tests to make sure her heart can pump adequately on it's own.
If they can successfully remove the ECMO, then they will start taking the steps to remove the vent. She also needs to get from the constant dialysis to intermittent dialysis. After all that she can finally leave SICU.
We need lots of faith & prayers today that she will be strong enough to have this pump removed.
On a positive note, her body is showing signs that it is tolerating the new formula.
If they can successfully remove the ECMO, then they will start taking the steps to remove the vent. She also needs to get from the constant dialysis to intermittent dialysis. After all that she can finally leave SICU.
We need lots of faith & prayers today that she will be strong enough to have this pump removed.
On a positive note, her body is showing signs that it is tolerating the new formula.
Service & Gratitude
Lynn & I have to leave SICU while the nurses have their change of shift and the doctors make their rounds. We can be in her room round the clock except for the hour and a half from 7-8:30 morning and night.
While we were here in the waiting room this morning, the housekeeper came in. Every time we see the housekeeper Lynn expresses his gratitude for all her work. This morning I watched as he helped her pick up and clean the waiting room.
As we knelt together in prayer today. He offered a prayer if gratitude. And simply asked that the Lord's will be done.
I am in amazement that as he is facing this time of stress and worry, he still serves those around him and offers gratitude at every turn.
While we were here in the waiting room this morning, the housekeeper came in. Every time we see the housekeeper Lynn expresses his gratitude for all her work. This morning I watched as he helped her pick up and clean the waiting room.
As we knelt together in prayer today. He offered a prayer if gratitude. And simply asked that the Lord's will be done.
I am in amazement that as he is facing this time of stress and worry, he still serves those around him and offers gratitude at every turn.
Sunday, April 7, 2013
Most Beautiful
Lynn commented today that Elaine was the most beautiful patient on the entire floor. We all agree!!
Her hair is growing back. I told her that her hair was starting to come back and told her Lynn couldn't wait till it was as long as it was when they were married (it was down to her waist). She smiled at the thought of that.
We won't know how her body is tolerating the new formula until the morning. Everything else seems to be holding steady.
Tomorrow is the big day that they will attempt to take the ECMO out. We will need lots of extra faith and prayers.
Her hair is growing back. I told her that her hair was starting to come back and told her Lynn couldn't wait till it was as long as it was when they were married (it was down to her waist). She smiled at the thought of that.
We won't know how her body is tolerating the new formula until the morning. Everything else seems to be holding steady.
Tomorrow is the big day that they will attempt to take the ECMO out. We will need lots of extra faith and prayers.
Update
Elaine had another good night last night for the most part.
She is even more alert today than she was yesterday. When I stepped into the room she turned her eyes to the doorway. She smiled at Mark when he was talking to her. She is even starting to chew on the vent. I'm certain she's trying to chew her way through it just to get rid of it. It is so nice now that she can answer whether she is hot or cold and if she is in pain. She doesn't seem too agitated and continues to drift in and out. We hope she is dreaming peaceful dreams while she is out.
They are trying to find the right balance for her body with her feeding. Her body has started to show symptoms of not tolerating the formula that she is on. They are going to switch her formula to see if she tolerates that better.
As a precaution, any visitors into her room have to wear gloves and gowns while they are in her room. For that reason, only immediate family members are allowed to visit.
They won't fully remove the external pacemaker until they know for sure that she can do everything on her own. They can turn it on and off as needed. They turned it on last night for a while and now it is back off. The more her heart does on it's own the better.
Lynn said he knows it is totally in the Lord's hands. Elaine needs the nutrition for her body to heal. We are praying they will know how to help her body to adjust to this new formula. Thank you for your prayers.
She is even more alert today than she was yesterday. When I stepped into the room she turned her eyes to the doorway. She smiled at Mark when he was talking to her. She is even starting to chew on the vent. I'm certain she's trying to chew her way through it just to get rid of it. It is so nice now that she can answer whether she is hot or cold and if she is in pain. She doesn't seem too agitated and continues to drift in and out. We hope she is dreaming peaceful dreams while she is out.
They are trying to find the right balance for her body with her feeding. Her body has started to show symptoms of not tolerating the formula that she is on. They are going to switch her formula to see if she tolerates that better.
As a precaution, any visitors into her room have to wear gloves and gowns while they are in her room. For that reason, only immediate family members are allowed to visit.
They won't fully remove the external pacemaker until they know for sure that she can do everything on her own. They can turn it on and off as needed. They turned it on last night for a while and now it is back off. The more her heart does on it's own the better.
Lynn said he knows it is totally in the Lord's hands. Elaine needs the nutrition for her body to heal. We are praying they will know how to help her body to adjust to this new formula. Thank you for your prayers.
Hitching a Ride
Yesterday while we were taking turns back visiting Elaine, Grandpa decided to take Logan on a little ride around the waiting room. Who wouldn't want to hitch a ride with Grandpa?
Flat Stanley's Visit
Spending time here in SICU all day every day means that we get to know the nurses really well and the nurses get to know us. Elaine has had some AMAZING nurses!
One nurse asked Lynn if Flat Stanley could make a visit. She dressed him up in surgical gear, placed him near one of the pump monitors, and took a picture to send to her grandchildren in California.
We thought Elaine might enjoy a visit from Flat Stanley and the thought of putting a smile in a child's face.
One nurse asked Lynn if Flat Stanley could make a visit. She dressed him up in surgical gear, placed him near one of the pump monitors, and took a picture to send to her grandchildren in California.
We thought Elaine might enjoy a visit from Flat Stanley and the thought of putting a smile in a child's face.
Spring Flowers
Over the years Elaine has planted thousands of bulbs on Little Mountain near her home. I told her the other day that the flowers were out in bloom and she'll be home to see them soon.
We were disappointed to learn that we can't cut some of the flowers and bring them down to her. Hopefully this photo of her granddaughters with the flowers will suffice for the time being.
We were disappointed to learn that we can't cut some of the flowers and bring them down to her. Hopefully this photo of her granddaughters with the flowers will suffice for the time being.
Mountain Climber
The University Hospital sits at the base of the Wasatch Mountains overlooking the Salt Lake Valley. We have access to a few trails up above the hospital.
Little Logan and Ammon shared their view from the mountain yesterday. Logan was especially excited about the helicopters.
Little Logan and Ammon shared their view from the mountain yesterday. Logan was especially excited about the helicopters.
General Conference
We are so happy that we can get General Conference in her room. Lynn spent part of conference holding her hand while watching on it on TV. The nurses encouraged us to put the speaker where Elaine could hear it because general conference is something she is familiar with.
We also pick it up on the iPad and it is also on in the waiting room. We missed some of conference but, will read or watch it later on.
We talked about how this experience has changed our perspective. We are grateful for the comforting words of our church leaders. The words of peace and testimony at this time have knew meaning.
We also pick it up on the iPad and it is also on in the waiting room. We missed some of conference but, will read or watch it later on.
We talked about how this experience has changed our perspective. We are grateful for the comforting words of our church leaders. The words of peace and testimony at this time have knew meaning.
Saturday, April 6, 2013
Good Day
Today was a really good day. She made lots of progress. They decreased her pain medication. With that, and not getting the sedative, she was more responsive today. Yesterday, we begged and pleaded for her to move her thumb on command. Today, she was moving her feet, smiling (as much as possible with a vent), and answering questions by nodding her head.
At one point John & Lynn were standing on different sides of her bed and she would move her eyes back and forth to whomever was talking at the moment. It was so sweet to see her smile and recognize Lauren at her bedside. We are ecstatic!
They turned the external pacemaker off today and her heart is beating on its own. They didn't remove the pacemaker just in case she may need it later on, but for now, her heart is doing great!
They also removed the balloon pump which helped add strength to her heart beat. This was the pump where she was bleeding at the place where it entered her body. They removed the pump and was able to finally stop the bleeding. Her heart seems to be doing fine without the pump.
She still has the ECMO, which helps circulate the blood through her body. It is working at decreased capacity from yesterday. That is a good thing. It means that her heart is doing more and more work on its own. They are hoping to try and take her off the ECMO on Monday. Things have to continue to go well tomorrow and she'll have to prove that she can go without it for a few days before we can know for sure how she is doing.
Once the ECMO is out, they'll monitor the possibility of removing the ventilator. They have to keep changing the settings because she is starting to breathe more and more on her own and she often over breathes the vent. She hates the vent and we'll all be happy when she gets it out and can finally talk to us.
John & Suzie, Mark & Brenda, Lauren, Ammon, & Logan all came to visit today. We enjoyed each others company as we took turns back in her room with her. It was a great way to spend their anniversary. The progress she made today was all the anniversary gift that Lynn wanted.
We feel your prayers. Thank you for your love and concern.
At one point John & Lynn were standing on different sides of her bed and she would move her eyes back and forth to whomever was talking at the moment. It was so sweet to see her smile and recognize Lauren at her bedside. We are ecstatic!
They turned the external pacemaker off today and her heart is beating on its own. They didn't remove the pacemaker just in case she may need it later on, but for now, her heart is doing great!
They also removed the balloon pump which helped add strength to her heart beat. This was the pump where she was bleeding at the place where it entered her body. They removed the pump and was able to finally stop the bleeding. Her heart seems to be doing fine without the pump.
She still has the ECMO, which helps circulate the blood through her body. It is working at decreased capacity from yesterday. That is a good thing. It means that her heart is doing more and more work on its own. They are hoping to try and take her off the ECMO on Monday. Things have to continue to go well tomorrow and she'll have to prove that she can go without it for a few days before we can know for sure how she is doing.
Once the ECMO is out, they'll monitor the possibility of removing the ventilator. They have to keep changing the settings because she is starting to breathe more and more on her own and she often over breathes the vent. She hates the vent and we'll all be happy when she gets it out and can finally talk to us.
John & Suzie, Mark & Brenda, Lauren, Ammon, & Logan all came to visit today. We enjoyed each others company as we took turns back in her room with her. It was a great way to spend their anniversary. The progress she made today was all the anniversary gift that Lynn wanted.
We feel your prayers. Thank you for your love and concern.
Happy Anniversary!
Today Lynn & Elaine celebrate their 41st wedding Anniversary.
He held her hand, kissed her forehead and wished her a happy anniversary first thing in the morning.
Her hand is quite swollen. She is retaining the fluids in her body that she is getting through the IV's. They can't drain the fluids from her body because she is loosing blood right now. Hopefully once they get the bleeding under control, they can start pulling off the fluids again.
We are planning to celebrate their anniversary when she makes it home. We'll have a big party when she makes it home that's for sure.
He held her hand, kissed her forehead and wished her a happy anniversary first thing in the morning.
Her hand is quite swollen. She is retaining the fluids in her body that she is getting through the IV's. They can't drain the fluids from her body because she is loosing blood right now. Hopefully once they get the bleeding under control, they can start pulling off the fluids again.
We are planning to celebrate their anniversary when she makes it home. We'll have a big party when she makes it home that's for sure.
Friday, April 5, 2013
Pump It Up
These are all the machines that are assisting Elaine. These machines are basically her heart, lung, and kidneys
She is on a ventilator. She was on a ventilator when she was first in the hospital before she was sedated and she hated it. We are hoping the vent comes out before she is fully aware again.
One machine is the balloon pump that help maintain pressure on the heart.
She also has the ECMO machine that helps her blood circulate through her entire body. Lynn refers to it as the gizmo instead of ECMO. I told him that's all it is, just a fancy gizmo.
She is also on temporary continuous dialysis. This assists her kidneys in filtering her blood and maintain the proper fluid balance in her body.
She has a special warming blanket to help her keep her body temperature up due to the fact that so much of her blood is being circulated outside of her body through the pumps.
She is on a blood thinner medication so the blood can flow easier through the pumps. The problem with the thinner is that her blood is not coagulating in other parts of her body either. She has been poked and prodded all over and has tubes entering into her body in several places. The doctors and nurses have to monitor all of those sites very closely for increased bleeding. She does have some external bleeding but not enough to make the doctors too worried.
She has an external pace maker to help her maintain a steady heart beat. They are encouraged by the fact that her own heart beat is starting to beat stronger on it's own. They are hoping to maybe remove some of the pumps on Monday. She can't leave ICU until she is off all of all these pumps.
She is on a ventilator. She was on a ventilator when she was first in the hospital before she was sedated and she hated it. We are hoping the vent comes out before she is fully aware again.
One machine is the balloon pump that help maintain pressure on the heart.
She also has the ECMO machine that helps her blood circulate through her entire body. Lynn refers to it as the gizmo instead of ECMO. I told him that's all it is, just a fancy gizmo.
She is also on temporary continuous dialysis. This assists her kidneys in filtering her blood and maintain the proper fluid balance in her body.
She has a special warming blanket to help her keep her body temperature up due to the fact that so much of her blood is being circulated outside of her body through the pumps.
She is on a blood thinner medication so the blood can flow easier through the pumps. The problem with the thinner is that her blood is not coagulating in other parts of her body either. She has been poked and prodded all over and has tubes entering into her body in several places. The doctors and nurses have to monitor all of those sites very closely for increased bleeding. She does have some external bleeding but not enough to make the doctors too worried.
She has an external pace maker to help her maintain a steady heart beat. They are encouraged by the fact that her own heart beat is starting to beat stronger on it's own. They are hoping to maybe remove some of the pumps on Monday. She can't leave ICU until she is off all of all these pumps.
Home Sweet Home
Elaine is in the Surgical Intensive Care Unit at University Hospital.
When she first arrived in SICU they told the family that she was the sickest patient on the floor. She had two nurses hopping round the clock. Since being upgraded to only one nurse, she is now competing with several other patients for who is the worst off. That can't be a coveted position to be in.
The SICU is the most high-tech, comprehensive floor in the hospital. They take all the patients who come out is surgery in critical condition. This includes transplants, cardiac, and trauma patients. You name it, they deal with it. We are comforted to know that Elaine has the best of the best working on her.
The hospital does deliver mail to patients. Her address is:
Georgia Elaine Womack
University Hospital
SICU room 2219
50 Medical Drive
Salt Lake City, Utah 84132
She can't have balloons, stuffed animals, flowers, gifts, or food in SICU.
When she first arrived in SICU they told the family that she was the sickest patient on the floor. She had two nurses hopping round the clock. Since being upgraded to only one nurse, she is now competing with several other patients for who is the worst off. That can't be a coveted position to be in.
The SICU is the most high-tech, comprehensive floor in the hospital. They take all the patients who come out is surgery in critical condition. This includes transplants, cardiac, and trauma patients. You name it, they deal with it. We are comforted to know that Elaine has the best of the best working on her.
The hospital does deliver mail to patients. Her address is:
Georgia Elaine Womack
University Hospital
SICU room 2219
50 Medical Drive
Salt Lake City, Utah 84132
She can't have balloons, stuffed animals, flowers, gifts, or food in SICU.
Drip Drip
These are all the IV lines that Elaine has going into her. Lynn says this is only half of what she had going in over the weekend. She is off of most of the heart and blood pressure medications (The nurses refer to it as rocket fuel). She is on a medication that helps strength her heart every time it beats. It just adds a little extra umph. She still has an external pacemaker, heart pump, and balloon pump to keep her heart steady and beating. She's on a blood thinner so the blood can go smoothly through the pumps.
They keep her heavily sedated so she can rest and recover. She is on a medication that causes some amnesia. We're certain she's not going to want to remember this past weekend. Lynn doesn't even want to remember this past weekend. They are working today to lower the sedative so she can be more responsive. We tried for several hours this morning to get her to move her fingers and toes to no avail but when the nurse suctioned her she furrowed her brow and pushed against my hand. We were all ecstatic. I hope she doesn't remember how mad we had to make her just for a simple response.
She gets her nutrition through her nose. She needs the calories to help her heal. It also helps keep all her insides active and moving.
She's also on an antibiotic to keep infection away. She's getting electrolytes to keep her balanced with the nutrients she needs.
She is obviously on pain medication. Her body has been through a lot this week. They give all ICU patients a stomach medication that will help prevent stress ulcers.
This photo also shows the monitor with her vital signs. This is a constant indicator of how she is doing. Her blood pressure is usually quite normal except when the doctors and nurses start messing with her. Her blood pressure goes up immediately. She just likes to be left alone. Again, we're quite happy she won't remember most of this.
Over the weekend she had two nurses hopping. Now we are just down to one nurse. That's an improvement and we will take any and all improvements at this point no matter how minor. The nurse spends most of the time here in her room. There are other nurses, doctors, physical therapists, respiratory therapists in and out all day. Her room is a hub of activity.
They keep her heavily sedated so she can rest and recover. She is on a medication that causes some amnesia. We're certain she's not going to want to remember this past weekend. Lynn doesn't even want to remember this past weekend. They are working today to lower the sedative so she can be more responsive. We tried for several hours this morning to get her to move her fingers and toes to no avail but when the nurse suctioned her she furrowed her brow and pushed against my hand. We were all ecstatic. I hope she doesn't remember how mad we had to make her just for a simple response.
She gets her nutrition through her nose. She needs the calories to help her heal. It also helps keep all her insides active and moving.
She's also on an antibiotic to keep infection away. She's getting electrolytes to keep her balanced with the nutrients she needs.
She is obviously on pain medication. Her body has been through a lot this week. They give all ICU patients a stomach medication that will help prevent stress ulcers.
This photo also shows the monitor with her vital signs. This is a constant indicator of how she is doing. Her blood pressure is usually quite normal except when the doctors and nurses start messing with her. Her blood pressure goes up immediately. She just likes to be left alone. Again, we're quite happy she won't remember most of this.
Over the weekend she had two nurses hopping. Now we are just down to one nurse. That's an improvement and we will take any and all improvements at this point no matter how minor. The nurse spends most of the time here in her room. There are other nurses, doctors, physical therapists, respiratory therapists in and out all day. Her room is a hub of activity.
Monday, April 1, 2013
Our Miraculous Easter Weekend
I need a space today to share my feelings. My feelings of gratitude are too great to keep them bottled inside. I'm struggling to write anything that does justice to what I have felt and experienced this Easter, bear with me.
To give you some crucial background information: In a fight with endometrial cancer this year, my mom has undergone a hysterectomy, long months of nasty chemotherapy, and half of the required five weeks of radiation. Though this has left her bed ridden for months at a time, in the past few weeks we have seen a full recovery of her normal habits. She has even started going on relatively long walks with my dad in the past few weeks. She was scheduled to have a heart surgery this fall after she had time to recover from the cancer treatments.
Late Thursday night/Friday morning my mom woke up to use the restroom. My dad accompanied her as she still feels very weak at times. When they returned to bed, my mom told my dad that she felt dizzy. She then began saying, "Help me, help me". My dad turned on the light to see what the problem was. Though her eyes remained open, her body first began convulsing and then became unresponsive. He checked for vital signs and could tell she was still breathing. He immediately called the ambulance.
She was taken first to the Preston, Idaho hospital, then to Logan Regional Hospital in Logan, UT and then life-flighted to University of Utah Hospital in Salt Lake City, UT. She arrived there Friday morning.
Meanwhile, I was at home cleaning and preparing for a trip to their house for our Easter weekend. My phone was turned off and I had no idea that my mom was in danger (not unusual for me if you know my phone habits). Ammon talked to my dad briefly at work and as soon as he could (around 11:30) rushed home to tell me the news. I called my siblings and got the full story, he took the rest of the day off and we rushed down to be at the hospital. Before we arrived at the University of Utah we got another call that after hearing my dad's story and looking at her body's response, the doctors believed she had had a massive heart attack.
My brother, Mark, who was nearest to the hospital met the life-flight helicopter when it arrived at the University of Utah. My dad quickly packed for a hospital stay and drove down to Salt Lake to meet them. Mark was able to talk to my mom for a few minutes before they whisked him away. He said that her eyes remained closed, but anytime he said anything she squeezed his hand like she could understand.
By the time Ammon and I arrived in the waiting room and talked with my dad and brother, they had already met with a team of surgeons and given consent for a major emergency heart operation to clear the blockage from the supposed heart attack. My dad informed me that there was up to a 60% chance that she would not survive the surgery due to the procedures that would have to take place in combination with her weakened condition from the cancer treatments. Waiting for word from that surgery was the darkest hour for me.
At the end of the surgery, we talked with several different surgeons, the first explained that they went in to clear the blockage from the heart attack and found none. She apparently hadn't had a heart attack, which meant the surgery became a lot less risky. They hit a tight valve (her original heart problem she was scheduled for surgery in the fall to correct) with a surgical balloon five times. They didn't dare do anymore as the stress from the procedure can cause a stroke. This loosened up her valve a little and meant her heart was able to function around 10-15%. The normal heart functions around 60-70%. The left side of her heart is very weak, they think as a result from the chemotherapy treatments.
Another doctor told us the plan. Though she hadn't had a heart attack, because of the low level functioning of her heart she had congestive heart failure. Her lungs were filled with fluid, and it was difficult for her to get blood to her organs. First they would be putting her on intravenous medications that would help her heart pump. The next goal would be to get her body to respond well enough to switch to oral medications that would then start to mend her weak heart.
Visiting hours were over by that point and we left to sleep for the night. When I called the next morning my dad said my mom was very alert and somewhat knew what was going on. They had a billion tubes connected to her, but what she didn't like was the vent down her throat that was helping her breathe. (As a premature baby I had had this same vent and hated it so much I eventually pulled it out myself.) My mom had the same idea so they had to restrain her arms all night to prevent her from taking anything out.
I knew that my mom was recovered enough to regain her normal personality when my dad described her frustration about the vent and her glares at the doctors and nurses who wouldn't take it out immediately. :)
We drove back to the hospital and I got to go in and talk to her --a huge blessing that I was afraid I would not ever get again during the surgery the night before. She couldn't talk because of the breathing vent at first and so she wrote her responses on a piece of paper. The very first thing she wrote was "I love you all." After a short time being there, the doctors finally agreed to take the vent out of her throat and she did well enough they could leave it out. She became much happier and could talk with us.
Throughout Saturday and Sunday morning she had small signs of progression during our visits, but overall not enough to ease the worries of the doctors. By Sunday night we got the word that they needed to operate immediately. She was not getting enough blood to her vital organs.If we didn't operate there was a 0% chance she would live, if we did there was a 70% chance. There was no argument from us.(We found out later from the surgeon that by the time she arrived at the operating table she was nearly gone, if the surgery hadn't of taken place that night we would have lost her.)
We stayed in the hospital until around 11:00 last night waiting for the results. The surgery started around five o'clock at night and we would get calls every two hours with updates that really didn't tell us anything, like "it's going just about as good as can be expected." Finally when the surgeon came out, it was good news. The surgery was done, a new valve is in place and her heart is enjoying the increased pumping ability. Everything went lots better than he expected. Now hopefully onto the recovery phase, she will most likely be in the ICU for around another three weeks.
Despite the craziness of this weekend we still maintained a little normalcy when we were away from the hospital. At my in-laws house (They were kind enough to watch Logan and provide us with beds and food through this whole ordeal.) we still dyed and found eggs, the Easter bunny arrived, and we watched some uplifting Easter videos.
One of the videos really stuck out to me. It was a message by Elder Jeffrey R. Holland. He talks about the timetable of Christ's last days and his resurrection. I couldn't help but compare it with our schedule this weekend. All this drama began on Thursday night, the day when the celebration of passover begins. Friday, my most difficult day, was the day that Christ atoned for our sins and was crucified. And Sunday, when my mom's recent miraculous surgery took place was the day of our Savior rising again, and being perfected, returned to His Father.
To give you some crucial background information: In a fight with endometrial cancer this year, my mom has undergone a hysterectomy, long months of nasty chemotherapy, and half of the required five weeks of radiation. Though this has left her bed ridden for months at a time, in the past few weeks we have seen a full recovery of her normal habits. She has even started going on relatively long walks with my dad in the past few weeks. She was scheduled to have a heart surgery this fall after she had time to recover from the cancer treatments.
Late Thursday night/Friday morning my mom woke up to use the restroom. My dad accompanied her as she still feels very weak at times. When they returned to bed, my mom told my dad that she felt dizzy. She then began saying, "Help me, help me". My dad turned on the light to see what the problem was. Though her eyes remained open, her body first began convulsing and then became unresponsive. He checked for vital signs and could tell she was still breathing. He immediately called the ambulance.
She was taken first to the Preston, Idaho hospital, then to Logan Regional Hospital in Logan, UT and then life-flighted to University of Utah Hospital in Salt Lake City, UT. She arrived there Friday morning.
Meanwhile, I was at home cleaning and preparing for a trip to their house for our Easter weekend. My phone was turned off and I had no idea that my mom was in danger (not unusual for me if you know my phone habits). Ammon talked to my dad briefly at work and as soon as he could (around 11:30) rushed home to tell me the news. I called my siblings and got the full story, he took the rest of the day off and we rushed down to be at the hospital. Before we arrived at the University of Utah we got another call that after hearing my dad's story and looking at her body's response, the doctors believed she had had a massive heart attack.
My brother, Mark, who was nearest to the hospital met the life-flight helicopter when it arrived at the University of Utah. My dad quickly packed for a hospital stay and drove down to Salt Lake to meet them. Mark was able to talk to my mom for a few minutes before they whisked him away. He said that her eyes remained closed, but anytime he said anything she squeezed his hand like she could understand.
By the time Ammon and I arrived in the waiting room and talked with my dad and brother, they had already met with a team of surgeons and given consent for a major emergency heart operation to clear the blockage from the supposed heart attack. My dad informed me that there was up to a 60% chance that she would not survive the surgery due to the procedures that would have to take place in combination with her weakened condition from the cancer treatments. Waiting for word from that surgery was the darkest hour for me.
At the end of the surgery, we talked with several different surgeons, the first explained that they went in to clear the blockage from the heart attack and found none. She apparently hadn't had a heart attack, which meant the surgery became a lot less risky. They hit a tight valve (her original heart problem she was scheduled for surgery in the fall to correct) with a surgical balloon five times. They didn't dare do anymore as the stress from the procedure can cause a stroke. This loosened up her valve a little and meant her heart was able to function around 10-15%. The normal heart functions around 60-70%. The left side of her heart is very weak, they think as a result from the chemotherapy treatments.
Another doctor told us the plan. Though she hadn't had a heart attack, because of the low level functioning of her heart she had congestive heart failure. Her lungs were filled with fluid, and it was difficult for her to get blood to her organs. First they would be putting her on intravenous medications that would help her heart pump. The next goal would be to get her body to respond well enough to switch to oral medications that would then start to mend her weak heart.
Visiting hours were over by that point and we left to sleep for the night. When I called the next morning my dad said my mom was very alert and somewhat knew what was going on. They had a billion tubes connected to her, but what she didn't like was the vent down her throat that was helping her breathe. (As a premature baby I had had this same vent and hated it so much I eventually pulled it out myself.) My mom had the same idea so they had to restrain her arms all night to prevent her from taking anything out.
I knew that my mom was recovered enough to regain her normal personality when my dad described her frustration about the vent and her glares at the doctors and nurses who wouldn't take it out immediately. :)
We drove back to the hospital and I got to go in and talk to her --a huge blessing that I was afraid I would not ever get again during the surgery the night before. She couldn't talk because of the breathing vent at first and so she wrote her responses on a piece of paper. The very first thing she wrote was "I love you all." After a short time being there, the doctors finally agreed to take the vent out of her throat and she did well enough they could leave it out. She became much happier and could talk with us.
Throughout Saturday and Sunday morning she had small signs of progression during our visits, but overall not enough to ease the worries of the doctors. By Sunday night we got the word that they needed to operate immediately. She was not getting enough blood to her vital organs.If we didn't operate there was a 0% chance she would live, if we did there was a 70% chance. There was no argument from us.(We found out later from the surgeon that by the time she arrived at the operating table she was nearly gone, if the surgery hadn't of taken place that night we would have lost her.)
We stayed in the hospital until around 11:00 last night waiting for the results. The surgery started around five o'clock at night and we would get calls every two hours with updates that really didn't tell us anything, like "it's going just about as good as can be expected." Finally when the surgeon came out, it was good news. The surgery was done, a new valve is in place and her heart is enjoying the increased pumping ability. Everything went lots better than he expected. Now hopefully onto the recovery phase, she will most likely be in the ICU for around another three weeks.
Despite the craziness of this weekend we still maintained a little normalcy when we were away from the hospital. At my in-laws house (They were kind enough to watch Logan and provide us with beds and food through this whole ordeal.) we still dyed and found eggs, the Easter bunny arrived, and we watched some uplifting Easter videos.
One of the videos really stuck out to me. It was a message by Elder Jeffrey R. Holland. He talks about the timetable of Christ's last days and his resurrection. I couldn't help but compare it with our schedule this weekend. All this drama began on Thursday night, the day when the celebration of passover begins. Friday, my most difficult day, was the day that Christ atoned for our sins and was crucified. And Sunday, when my mom's recent miraculous surgery took place was the day of our Savior rising again, and being perfected, returned to His Father.
I have felt close to my Heavenly Father and Savior many times in my life, but this weekend I felt a greater dependence on Them and acceptance of Their will more than ever before. I know that my mom is in their hands. Elder Holland talks about the extreme loneliness that Christ went through in those last days leading up to his death. Though surrounded by family, friends, and the prayers and support of so many people this weekend I also felt that extreme loneliness many times. I am so grateful for our Savior Jesus Christ, that he knows our hearts, and has experienced all the pain and afflictions we will ever face. In my loneliest moments I received strength from Him.
I want to send out a huge thank you to my family. Thank you to my dad and brothers for banding together and being so strong this weekend. Thank you for your examples and your worthiness to hold the priesthood and exercise it.
Hero isn't an adequate word to describe my dad. I love him so much. This has been harder on him than on any of us and he helped the rest of us through it all. Every doctor and nurse who came anywhere near my mom got nothing but heartfelt thanks from him no matter the news they were bringing. One of the first things he said when I first arrived at the hospital was "I know that Heavenly Father has a plan for her. I just don't know which one it is yet. But either whether she makes it or not, He knows best."
Thank you to everyone for all the prayers on our behalf. Please keep them coming.
-Lauren
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